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Monday, October 18, 2010

.5

On the eve of today's treatment I hit the psychological skids- I announced that I was weary of being brave, positive and being such a good sport about having cancer. I had even lost my desire to accessorize creatively and was stalking the house with my bald head. I had a stomach ache and a bad attitude and was dreading today's chemo. I wanted my total health back and I wanted it now!

My family met me halfway and gave me permission to be as cranky as necessary. Poor me was the theme of the evening. The problem was that my family kept making me laugh when I was determined to be miserable. It turns out that it is almost impossible to laugh and wallow in self pity at the same time. One of my mantras in life has always been "It's not what happens to you but how you deal with it". My kids had mockingly put that phrase to music long ago and pulling no punches sang it to me last night. That was the final blow and I was forced to end this foray into negativity. Jonathan and I watched Randy Pausch's last lecture last night. Jonathan took his class while at CMU. I watched the lecture again today. If you haven't already seen it, I recommend taking a look. It's 75 minutes long, and worth every minute.

Click here to see the lecture.

I'm not sorry I had this funk. Sometimes you have to visit that dark space as a reminder of how useless it is in moving forward. It's about facing fear in the positive rather than negative spaces and knowing what cancer can and can't take away from you. I'm sure I'll be there again, but not for a while.

We used to say in the Tocci family that humor was a combat sport. Jonathan, Sam and Zoe rose to the challenge in yet another example of their resourcefulness and love.

Today I finished the first round of the new regimen. Arlene was there at 6:45 with her palpable generosity of spirit. Any remnants of last nights sadness were dissolved by her mere presence. She sat with me while I mostly slept but I loved that she was there as a constant reminder that caring relationships keep us in a positive space. I have never feel alone during chemo and that has made it so much easier to handle. Susan, my meditation coach is helping me rewrite so many narratives around disease and healing. Not that anyone would chose this path, but there is much to learn from this if you are dealt this hand and I will come through this a very different person.

So we are half way there- 5 treatments down and 5 to go. 15 actual days of chemo left and then we see where we are- which we pray will be remission. The remission party will be grand- with Frank and Deanne playing Lady of Spain on the accordion. I'm sure Ed Stein will do a roast and the rest of you can begin thinking of how best to celebrate. I can only imagine.

Thanks for taking the first half of the journey with me- and I know we are all in this for the long haul. Having you on this journey with me is such a gift.
Blessings to all
MJ

11 comments:

  1. Hey, I think it's good to have an occasional melt-down, sick or well, keeps the fam on their toes! Our family slogan is :
    When in danger or in doubt,
    Run in circles, scream and shout.
    Halfway through - you are so amazing, MJ, I love you and am proud to be your friend. Now if you'll excuse me I'm going to go start making snacks for the Remission Party.

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  2. MJ, as Ann said above, you are certainly entitled to a meltdown...you've been to hell and back and you are truly inspirational! I can't wait for the remission party and will bring something delicious!!!! :)

    Jan Shaw

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  3. Save a little funk for my next visit!!! Always thinking about you, love Karen

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  4. Thanks for mentioning Randy Pausch's last lecture: I had never seen it. So much good advice. You have a similar level of energy, and love of fun.
    Hugs, Pola

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  5. MJ,
    I think a chemo/cancer funk goes into the same category as.....Every Good Playdate Ends With A Meltdown When It Is Time To Leave.
    Love you!

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  6. Hi MJ, this post is so YOU. I think about you a lot, and am glad to see you bucking up so well. In the Lord's Prayer, nonstupid version, Christians pray to the Lord to "protect us from the time of trial," and I think of you when we say that. S/he didn't do a great job of that for you, but has clearly given you the support and resourcefulness to deal positively with the trials sent -- even when you (with great attitude--I approve) resolve to be negative. Leave room for that negativity. I always say that complaining solves every problem. Clearly it doesn't but just saying it somehow relieves my need and desire to complain.... Much love JCW

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  7. P.S. I bought a birthday card for you, again because it was so you. But now I need to know your birthday....

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  8. Congratulations on being half way! That's a wonderful and important milestone. Thank you for sharing your journey with us, both the wallowing and the celebrating.

    Randy was a student of my father's whom I knew a bit when he was at Brown; his story never ceases to amaze me and yet ground me at the same time. I also find strength in dipping into his book from time to time. Thanks for the reminder - I have a friend who might really benefit from his thoughts right now!

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  9. To: Joan Williams

    MJ's birthday is May 18!

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  10. Hi MJ! Drove past your home today on way to see Rebecca Harris (who also mentioned your name) so took both as a "sign" that it was high time I circled back to your blog to see "whassup"!

    THANK YOU for the timely, eloquent and honest reminder that on occasion the very "human" part of our journey as "spiritual beings having a human adventure" can suck. I also adore your family for giving you the space/grace to whine, wail & wallow for a while.

    Heard Kelly Corrigan speak at recent PA Governor's Conference for Women; her YouTube video titled Transcendence made me think of you and the wonderful loving family/friends loving & supporting you every step of this path you're traveling. You've probably already seen it...if not, ENJOY!

    http://www.youtube.com/watch?v=u_4qwVLqt9Q

    Smiles and a 3 breath hug,
    CAL

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  11. As always, sending healing thoughts to each of you, miss seeing you, and please let me know if there is a time when you need anything else - food, drivers, hugs, whatever! Susan Loether, ps my husband & you are birthday buddies :)

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