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Monday, January 24, 2011

A funny thing happened on the way to chemotherapy

I seem to spend quite a bit of time at Magee hospital between chemo and labs. I meet the most interesting people. Thursday I was in my friend Dave's line for labs and I heard him offering comforting words to the lady ahead of me. He's got a heart the size of Texas and was once again going above and beyond in the kindness and compassion department. I was surprised to hear him say "right behind you is MJ and she's a cancer survivor with a great attitude." The woman named Bee had tears running down her face as she tumbled into my arms. Bee told me that she has just been diagnosed with cancer. I heard her story, understood her shock and did my best to offer encouragement and comfort. She has no health insurance despite the fact that she works full time as a chef. She's been having symptoms for 6 months but was couldn't afford to go to a doctor. My heart broke for her. I can't imagine how it feels to worry that you cannot afford the treatment that will save your life. We talked for a long time. I can't stop thinking about her. Are you listening Mr. Boehner!

Today while I was in my chemo bed I met Terry who was getting a shot right across the way. She's in treatment for breast cancer and we starting talking. We were joined by my friend Chris and her husband and daughter. Chris is also in treatment and had lost her hair since the last time I saw her. We had an impromptu cancer party! Chris looked great in her hat today and Terry was wearing a wig that made her look very glamorous. Terry told us that for New Years Eve she shaved her head, made herself up, wore great earrings and her bald head to a party. She said she decided that she loved her bald head and it was empowering to show it off. I am constantly amazed at the courage and inspiration that I see in that chemo room.

Kimberly joined me today, and kindly ran an errand for me in the middle of the chemo. Sisters in law Betsy and Pola will join me tomorrow for Act 2 of 3 for what I hope is my last round of chemo. Today my CA 125 was 11, internal exam was normal, and Krivak is optimistic that I will get a clean CT scan. If so, we start planning my remission party! If the CT scan is not clean I've signed up for 3 more rounds of IP chemo which will take 9 weeks. I'm ready for whatever happens.


We had a fantastic visit from niece Catherine last weekend. We subjected her to watching Mad Men, comforted her when the Patriots lost to the Jets and totally enjoyed hanging out with her. She's smart, witty, ready to try anything (including yoga ) and we look forward to more time with her soon. .

Perhaps you've heard that the Steelers are going to the super bowl. My favorite email (thanks to the Ziff's ) was a picture of the Steeler's jet with a caption that said "This is the only jet going to Dallas". I was wearing my yinz & yangz tee shirt, with my Steelers do-rag and my sweatshirt that says "70% of the earths surface is covered by water, the remaining 30% is covered by Polamalu. We are happy here in the burg on the stairway to 7 super bowl titles. Yes, the hospital was awash in Steelers paraphernalia today and 50% of the employees were in Steelers jersys. Only in Pittsburgh!

Monday, January 10, 2011

5/6th of the way there

I received many cards hoping that 2011 would be a "less interesting" year but our son Sam turns 16 tomorrow so this is very unlikely. I see visions of car keys, girlfriends, even more independence and I'm breathing deeply. With two teenagers in the house, life is filled with possibility, imminent catastrophe and negotiations. I knew my meditation practice would pay off beyond cancer.

Today Marlene joined me for the final act of round 5 of chemo. Of course the Women's Cancer Center at Magee was an homage to Steeler Nation. Terrible towels, black and gold ribbons and Steeler accents were everywhere. I was looking for a sign that said "Cancer schmancer, the Steelers are in the playoffs".

My last treatment is January 31th and CT scan will be the third week of February. I will start a year of evastin soon thereafter. This treatments should be easy to tolerate and my hair will grow back. Christie's wants my false eyebrows and wigs but I'm holding out for a better offer. Rumor has it that Troy Polamalu is interested.

The psychology of remission is more challenging than I would have expected. Since my diagnosis all I could think about was that I wanted to get there, stay there, live there and put this behind me. But, I have cancer and I know that often it does not go away permanently. It means living positively with a unique brand of uncertainty. More as I ruminate further on the problem that I hope to have soon.

In the life goes on column, I am assisting the mock trial team at Sam's High School which is the brand new Science and Technology Academy. It's an inspiring group of freshman and sophomores (his school only goes up to 10th grade presently) who compete against high schools with juniors and seniors from across the state. This weekend was their first competition and they made us all proud. Sam received an outstanding lawyer award and as a result has decided that cross examination is his preferred method of communication. This too shall pass.

Zoe seems to be navigating middle school with the appropriate amount of angst. She loves science and math and wants a career that allows her to "do random and creative things whenever she feels like it". Sounds like she will work for Google or become an heiress. Jonathan is enjoying his work with WQED and we are putting the finishing touches on the promo for our documentary.

For whatever reason, December was not productive for me. I needed more rest, surrendered to it and mostly contemplated what the next phase of my life would look like. More to come as the narrative emerges.

Thank you always for your cards, and calls and visits and support. Niece Michele's visit from Spain was so nourishing and she made it as my chemo buddy without fainting. Niece Catherine is coming this weekend and we await a visit next week from grandma Lenore and sister's in law Betsy and Pola. We are all making huge and unimaginable strides together.