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Monday, September 17, 2012

From Brother Joe


The news came to MJ at the Pittsburgh airport on the way to Boston for a well deserved vacation. My family and I were so looking forward to seeing Tim and MJ. I had painted MJ's name on the back of the comfy chair. We were ready!
Any normal person would have just turned around and gone home. But MJ was coming. And as usual we would have to listen to her bitch and moan the next 6 days. Like she isn't enough high maintenance already!
MJ arrived in Boston and ignored everyone. My Son Joey was so looking forward to seeing her, and she walked by him at the house without even a hello. He was devastated. She then proceeded to kick Callie the Lab in the head. This was only topped by Timmy taking a photo of her and she grabbed the phone and thru it in the lake. This was going to be a great week. Anyone have a spare I-Phone for Uncle Tim to borrow?
Ah - but maybe I am confusing this with how I would have reacted to the news. In fact the hug at the airport was so sincere and outward, with the incredible positive attitude emanating, I knew we were in for a wonderful week. And as it turned out, between Timmy's 10 pound grape leaves, and a small glass of Scotch here and there, it was as usual inspiring to see the amazing fight and attitude MJ consistently demonstrates. I am sad to say we see her off this morning, but all our love and prayers are with her and her family, and in our hearts we know she will again conquer this next challenge with the heart of a lion, continuing to earn the admiration of all she comes in contact with.

Sunday, September 16, 2012

Here we go again

Quiz;  ONE OF THESE THINGS JUST DOESN'T BELONG HERE:

(a) France  (b) Chicago (c) navy webcasts (d) teach at CMU (e) chemo (f) launch Negotiation Academy (g) coach Sam and Zoe's mock trial team

If you guessed (e) you are correct in theory but as it turns out next Friday I will start chemo again.  That makes this a trick question. So, I've had a recurrence after 21 months of remission. The time in remission is predictive of how well I will respond to chemo and 21 months is a good number.  I am ready to take this on and my family has my back.  Yes, you could start your prayers any time now.  As a reminder here are my favorite ground rules:

  1. Everyone wants to know what they can do.  The best thing you can do is to keep it normal- You don't have to avoid any discussions but know that I will talk about cancer when I need to.  Also know that I am interested more than ever about what is going on with you that doesn't involve cancer. That's how I keep my balance.
  2. Cancer is not the minimum standard for complaining. If you had a lousy day I care and want to hear about it.  Please don't start the sentence with " I know it's not as bad as what your are dealing with" per item #1. 
  3. As you can guess, I am very direct and honest about what's going on. 
    When I appear cheerful and strong you can trust that it's real  because I will also let you know if it's a bad day.  I will also let you know if I need something - I learned in round #1 that it helps everyone if I just ask for what I need.
  4. Most days will be good.  I've beat this before and plan to beat it again.
  5. My friends and family are critical to this journey.  Don't worry about being intrusive.  I won't answer the phone if I don't feel like talking.  Write anything on the blog that you want.  I love reading what you say.
  6. My cancer is a chronic disease- there isn't a cure.  This recurrence was predictable (but not welcomed)  and will likely happen again if we play the odds.  We are all in this for the long game-  
  7. I am grateful that you are all in my life.  Please know that having an army of the strongest and fiercest women and men in the world is very comforting.  It's more than comforting.  It's awesome. 
My brothers and I spent the weekend together in New Hampshire polishing off 1.75 liter bottle of single malt scotch. It was purely medicinal. 

Saturday, February 11, 2012

What's in a year


Valentines Day is the one year anniversary of my remission. This calls for a very good bottle of champagne. My numbers are still good (CA 125 under 6) and there are days at a time when I actually forget that I have cancer. (FYI cancer is always a present tense phenomenon). My reminder is the half day I spend at MaGee Women's Hospital once a month for my Avastin treatments which I will do forever. I expect this forever to be a very long time.

There is no greater perspective building exercise than spending time every month in a chemo room. Every time, without exception there is a poignant exchange, usually with strangers, who all share a common enemy. It's amazing actually. Last time I sat next to a woman who was having a CT scan to determine if she was in remission; she had been in and out of remission several times. We held hands in the waiting room and talked about the possibilities. Comfort words must be selective- you can never say "it will be OK" or "I'm sure you'll be fine" because those well meaning comments are not realistic to cancer survivors. Instead you say "I will hope and pray for good outcomes" or " I pray that you have the strength to deal with whatever news you get". Thank you all for knowing just what to say in your posts and in your cards, and calls and visits. I can only hope you know how vital you were to my journey and my recovery.

I am busy helping two amazing teenagers navigate through middle school and high school. Zoe will be going to Sam's school for high school this fall. They are both excited to be at the Science and Technology Academy together. Zoe is a math and science girl so this seems to be a good fit for her. She loves computers and has expressed an interest in the computers and connection concentration. Zoe is taking an African dance class at Dance Alloy and loving it. She is an expert computer gamer and her current favorite is kingdom hearts. She speaks of it in a language I don't understand. She works with the friendship circle as a volunteer and as a special friend and Sam volunteers as well which enhances their lives and the kids in the circle.

Sam will get his driving license imminently and his words to you are "if you don't like my driving, stay off the sidewalks". I believe his grandfather is responsible for this wisdom. Pap pap we miss you and can't believe it is two years since you've been gone. You remain in our hearts and I still reach for the phone often to call you to share the day's joys and sorrows.

I am teaching negotiations for the Heinz College at CMU and enjoying it tremendously. My students are wicked smart and diverse in so many ways- age, profession, nationality, gender, it's all you could ask for a negotiations class when diverse perspectives are often the key to success. I am working hard to raise $250K to launch my negotiation academy at CMU. Meeting with corporate, foundation and individual donors to meet this goal. All ideas welcome. I remain convinced that this is the intervention that will truly make a difference for women at all ages and stages. I am also coaching the mock trial team at Sam's high school and we won our first round of competitions. We are very proud and the young counselors and witnesses have achieved a proficiency that they didn't think was possible. It is a satisfying endeavor for all involved.

Jonathan continues to be a force of creativity and persistence. He is designing a pilot for pharmaceutical companies to move our successful webcast model to other industries. It would seem the right fit for all his talents and a good timing to appeal to Pharma. Jonathan's work is truly spectacular. He does Bikram yoga many times a week which keeps his back and attitude nicely adjusted.

Brother Tim lives a couple of blocks away which couldn't be better (well maybe next door). We love his special friend Laurie and her son Peter and enjoy all the time we have together. We will all be in Florida at the end of March with brother Joe and family to watch niece Catherine play softball. Joe and I now in Florida to help out the octogenarian aunties who we love so much. Aunt Dot (age 89) is very compromised cognitively and Aunt Margaret is beyond heroic in taking care of her. These women have known each other for over 70 years! We helped Margaret (age 87) get an ipad yesterday in an attempt to catapult her into the 20th century. Today is the tutorial; it should be interesting. She still can't believe that you can get a newspaper electronically.

Well here's a pause to celebrate life, friends, family and making sure that in our time here we make a difference.