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Tuesday, August 3, 2010

Chemo day - the first step on the road to recovery.


It's so cool to have MJ home. Cousin Jackie left Saturday morning on the Greyhound to DC. Jackie's visit was wonderful....we planned a cozy week at home, but by the time she arrived MJ was unexpectedly back at Magee. So Jackie became expert at navigating route 71a on the Port Authority Bus...and we tag-teamed it. Home with Sam and Zoe, and at Magee with MJ. Thank you Jackie. We miss you.

A couple hours after Jackie left, MJ came home. I have to be honest with you...she's frail. Not a lot of stamina, a fair amount of nausea, and still somewhat short of breath. Fortunately, my sister Betsy arrived from Minneapolis that same afternoon. So good to have her with us...thanks Mike for letting us have her!

So with MJ home and Betsy here, we've been setting up for end-of-summer, return to school and chemo. Betsy and I have been doing some fun cooking....although MJ's appetite hasn't been great. Sam started his internship this week. He's working with Susanne Gollin in her genetics lab. Pretty exciting. Zoe will be going to Naperville to be with my brother and his family this weekend. A busy few days.

And today, I'm writing this entry from the Women's Cancer Center at Magee. MJ is finally getting her first chemo treatment. We've been looking forward to this for quite a while. We settled on a little less aggressive chemo regimen to start with....for at least two cycles. MJ will get Taxol and Carboplatin I.V. today, and again in three weeks. She'll have the intervening three weeks off. After that time, depending on her response to the treatment, we may move to some more aggressive treatment.

We're feeling very positive about the chemo. They're getting very adept at handling side effects these days, and the drugs are getting more specific in targeting cancer cells. The surgery MJ had when she first came to Magee removed all of the MACRO-scopic tumor. The chemo is aimed at the remaining MICRO-scopic tumor (plus whatever has grown back in the interim). There's still a lot of tumor left....as evidenced by the fluid in the lungs, fluid in the abdomen, pain etc. These symptoms will all be significantly improved by the chemo, since it will likely get all of this remnant tumor. So the chemo is indeed the path to recovery. We'll be sure MJ gets whatever nutritional supplements are appropriate in chemotherapy. Additional treatments (including some alternative treatments) may play a role once MJ is in remission.

You may have noticed that there are no more volunteer food dates on the helpinghands website. We are cooking much more often now. We will, however, add some other tasks...including some Zoe activities (breakfast, lunch and other outings). We've also set up an account at WHEEL DELIVER for restaurant meals delivered to our home. If you would like to make a donation to WHEEL DELIVER for us just call (412) 421-9346 and tell them you want to donate to the "Tocci Rest" account. They'll tell us about your donation.

So that's it for now. MJ is feeling stronger today, and we are very hopeful for the future. Thank you for hanging in there with us. Love MJ and JR.

Addendum:
Now 8:30 pm on first chemo day. MJ feels good. Our spirits are excellent.
JR

16 comments:

  1. May the malignant cells gobble up that chemo! Beautiful thoughts to you all.
    Pola

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  2. Layton said--

    We are staying tuned--thank you JR for the new post--and sending vibrant, effervescent, healing, cleansing and strength-filled thoughts your way.

    xo debby, Terry, Ella, Lauryn xo

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  3. Thanks for all the updates Jonathan and MJ. We are heading out of town tomorrow but wishing you all the best these next couple of weeks. Will call to get together with Zoe when we get back. Wishing you strength, healing, calm (get out those meditation and chanting tapes!)faith and lots of love.
    Deb

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  4. So glad to hear that chemo has started. My best thoughts, wishes, and vibes to MJ. And thank you JR for the blog to keep people updated on everything.

    Ruth

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  5. I am grateful beyond words that MJ has arrived at this point. When I think of all she has endured these past weeks it is a testimony to her will and grace and all the support of her family, friends and that which is good in the Universe. I offer prayers of gratitude for the past several weeks and what I know will be the goodness in the future.

    Thanks for the updates. Hugs and kisses, sweet MJ.
    Linda H.

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  6. I am glad to hear that MJ is home and tended to with such love. Reading your blog has become my very first morning ritual. I feel blessed to be included as a fellow traveller on this challenging journey with you all. Hang in there, MJ. I am telepathically zapping you with positive thoughts and warm wishes from the desert heat of Arizona. Can you feel it?

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  7. May God bless you every moment of this strange and unfamiliar journey with unfailing strength, patience and perseverance. You are loved and prayed for daily from South Jersey! XOXO

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  8. Love your addendum and hoping MJ continues to feel good and spirits soar.

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  9. Thinking of you and hoping the chemo gets off to a strong start!

    Alison S.

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  10. Jonathan: thanks much for the posts, they are a godsend

    MJ: thinking of you 24/7 and sending my love your way

    Linda

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  11. Hi, All: As others have said, we hang on every word on this blog. It has generated a connection that is a blessing for those of us who can't be there to express our feelings in person. What a family! You all are terrific and so fortunate to have each other. M.J., keep up the good work. What a rooting gallery you have. Love, Nicki.

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  12. Jonathan: Thanks for the posts, which I am reading with love and good thoughts. MJ: Yes, gain your strength and heal.
    Love, Pat B.

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  13. Thanks for the update. Sending energy and healing thoughts and prayers your way. Cheering for the chemo to be nasty to the evil cells and gentle to MJ's good cells. Grateful that Sam is a member of our team investigating how to more effectively target and eradicate cancer cells without harming normal cells.

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  14. Mj--I am thinking about you so much and you're in my prayers--I am here for you...Steph Rex

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  15. We continue praying to the Lord. May the Lord give you fortitude to deal witn this difficult times.
    Carlos (Tim´s roommate at USNA)

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  16. Always thinking of you. Thank you so much for the news.
    Love,
    Anita and Michael

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