"I've always grown from my problems and challenges, but when things don't work out... that's when I really learn" - Carol Burnett
Hello from Magee Women's Hospital.
As you can imagine, this has been quite a week. How did we manage to get here? Here's a quick recap. Late last year, MJ went in for a routine physical exam, and her doc found a nodule on the right side of her thryoid. A needle aspiration was not conclusive so, on the advice her doctor, we signed her up to have the nodule removed, along with the right half of her thyroid. On Cinco de Mayo, MJ underwent the surgery without blinking an eye. Recuperation was swift, and MJ was back on track within a few days. 10 days later she delivered a lecture to 100 entrepreneurs at Chatham University as part of the Women's Leadership Conference. The pathology exam at the time of surgery (frozen section) was normal, but the final report showed thyroid cancer. As her surgeon was quick to point out, "If you have to have a cancer, thyroid cancer is the one you want to pick". MJ added that she would choose the NO CANCER option, but this was not one of the listed choices.
On June 14th (Flag Day - MJ prefers to go under the knife on holidays) her surgeon removed the left side of her thyroid for a matched set. Just as was the case with the first surgery, MJ bolted from the hospital within 24 hours of surgery. But the ensuing days were rough.... a fair amount of abdominal discomfort and distention. We attributed these symptoms to side effects from her pain medicine, but by 1am on the 3rd day after surgery the symptoms had progressively worsened. After 3 hours at Shadyside emergency, a CT scan showed ascites (a fluid collection in the abdomen usually caused by cancer).
They shipped us off to Magee Hospital, where they have a team that specializes in cancers of the female variety. We've now been here for 3 days, and MJ has been poked and prodded relentlessly. Magee is a teaching hospital (part of the University of Pittsburgh) so there's been a continual parade of teen-aged doctors-to-be tromping through. Some of them are diligent and adorable, others somewhat clueless. We're very happy to report that MJ's main docs are stellar: Tom Krivak, gyn-onc, and Peter Tanzer internist.
We've had our share of nosocomial (hospital caused) problems, including a skin infection from the needle sticks. Also, an IV blew during a CT scan infusion, dumping 100 cc of contrast dye under the skin of MJ's left wrist.
But all in all, we remain amazingly optimistic. MJ's colonoscopy showed that the tumor does not involve her colon, which is a very good thing. MJ's spirits are very strong and she has an remarkable outlook. "Let's get this show on the road...I have things I need to do" has been her approach all along.
As a couple of the docs reflected on the presence of both seemingly unrelated cancers, one of them remarked "lightening is not supposed to strike twice in the same place....but in this case it looks like it did". That was our feeling too.
Surgery is scheduled for 8:15 tomorrow morning, Tues June 22. When they consented us for the surgery the consent form listed just about every possible surgery one could imagine. This is a reflection of the fact that they don't know what they are going to find. They'll decide what they need to do when they unzip MJ and take a look. Right now, we believe the tumor is ovarian, but we'll know more after it comes out. The surgery will last anywhere from 2-6 hours.....we'll keep you posted.....
We invite you join us on this blog often. We'll do our best to keep it up to date. Thanks to Jody Rosen Knower, whose blog inspired us to write this one. Like Jody, we'll have a few ground rules to help us all remain relatively sane during this process:
1. Please add your comments to the blog. We love to read them, and we can do so on our own schedule.
2. Feel free to incorporate humor into your comments. The doctors have prescribed a diet of as much humor as possible, and they've promised not to remove MJ's sense of humor at surgery tomorrow (as if they could!).
3. When in doubt, post a comment instead of calling or emailing. At the moment, we're limiting visits and calls to immediate family. We'll let you know when this changes.
4. Even if they tried, the docs couldn't remove MJ's sense of humor.
5. We reserve the right to add more rules as time goes on.
Talk to you later.....
Jonathan
Hi Everyone:
ReplyDeleteOkay, so you all have to watch this totally awesome short documentary about cancer survival. http://www.youtube.com/watch?v=-zvDu2KMzqs
I have seen it twice now, once at the bus stop near Pitt, tonight at 9:30pm, and now again that I am home. It's so good! I like it better on the second viewing, and am sure that I'll see it again and again.
My favorite line in the film: "I think it's a monster" and "It changed my life…for the better." The speaker of the last line then bows and holds her hands in namaste.
I salute the divine in me and the divine in you; me in you and you in me. We are all going through this together. It is hard, because all of us have had quite enough of this cancer menace, but here were are, confronting it again.
Love to all,
Kimberly
Love your posts! Thanks for doing the blog so we can keep up. BAthing you in pink light today adn tomorrow. Know of a great after surgery anticancer diet: the Gerson diet. Love you,
ReplyDeletePola
We really appreciate your taking the time to keep us abreast of MJ's progress. She has been on our minds non stop. Of course she has the strength and courage...we love her and will continue to think of her today and all the days. If you need anything, we are around...take care of yourself too Mr. Caretaker!!
ReplyDeleteBest and love. Michelle
thanks guys for helping us get the blog rolling
ReplyDeleteJ
Thoughts,love and prayers are with MJ and all of you, this morning. I will be away this week but I'll be around in July. I will be here for all of you then.
ReplyDeleteDebbey
Hey MJ,
ReplyDeleteWe're thinking of you, can't wait to see your smiling face after this surgery today.
By the way, I'm not used to this blogging thing. I thought I already added a comment, but apparently it disappeared. I guess I did something wrong. My kids just roll their eyes, throw their hands up, walk away. But, I'm trying. The "handle" Lupin4669 is a long story, I would probably characterize as an early attempt to be mysteriously anonymous. Doesn't work here, but I don't know how to change it.
-David K.
... Oh, and Jonathon, as I said in the aforementioned post which somehow didn't make it to comment-land, I (we all) really appreciate your posts, keeping us up to date. They are terrific. I had suspected that phoning in would be overwhelming given the number of friends that MJ has, so it is good to get confirmation on when and how we might be able to communicate with her.
ReplyDelete-David K.
Thanks for sharing this! I am glad to see your spirits are high. It is the best way to fight! My prayers and thoughts are with you at this time.
ReplyDeleteRoberta
Hey Jonathan:
ReplyDeleteBig love coming at you from the left coast! When you get a chance, please post some pics of MJ in her hospital gown ensemble. I've never in my life seen her looking anything less than stylish, so I eagerly await seeing how she pulls this one off. ;)
You're both in our thoughts today.
In spite of the circumstances, Jonathan, or maybe because of the circumstances, you and MJ and what you wrote about MJ are spirit-lifters, so I've put you on my inspiration-for-the-day reading list. Keep those postings, with LOL moments, coming. I'll keep sending best healing and recovery vibes, wishes, thoughts, and prayers, and invoking the spiritual spiraling energy from those powerful Sedona, AZ vortexes to make a comforting, healing bee-line, an unusual flightpath for them, to MJ and everyone caring for and about her.
ReplyDeleteSmooches (your signature word, MJ),
Cousin Susie
You could have just said that you didn't want us to visit you! It would have been a lot simpler than going through all this. Don't crack too many jokes during the surgery... we don't want any slips of the scalpel! Our thoughts are constantly with you.
ReplyDeletelove,
terry, debbie, lauryn. & ella
MJ does like to have surgery on holidays! Know what today is? "Stupid Guy Thing Day", the day on which we celebrate, as you might guess, the stupid things guys do (really). MJ, we're rooting for you and saving you one BIG glass of wine.
ReplyDeleteThe I Just Can't Say No Club
The Lagoon Squad has been activated! We will be arriving momentarily-- securing the area, scaling the walls and ensuring all is safe and comfortable for our fearless Sergeant Tocci.
ReplyDeleteWhere should we store the canoes?
I guess it will be a while before you can give MJ a BIG hug from me (and Birdie and Dave too) ... Meanwhile ...sending LOVE and HEALING wishes to her! ... and LOVE to you, Jonathan! thanks for the updates!
ReplyDeleteWell, MJ, your posse from junior high is totally unsurprised to learn you'll be whupping two cancers when one would have been plenty - always the over-achiever! Love you, old friend.
ReplyDeleteMJ! This is startling news BUT with your amazing family, spirit, focus and determination you will emerge on the other side of this experience with a story to tell and more leadership to offer to the women around you. (Jonathan, this is a great excuse not to be board president.) Love to you and your family, Diane
ReplyDeleteElla, Dan, Eli and Micah are keeping you close to our hearts! Our prayers are strong!
ReplyDeleteDearest M.J. and Jonathan,
ReplyDeleteToday we went with Noa to the Magen Abraham synagogue in Omer so that she get some practice for her bat-mitzvah, and at the moment when we prayed for the health of those dear to us we thought about you. It's not clear if god understands Hebrew better, but just in case...
מי שברך אבותינו אברהם יצחק ויעקב ואמותינו שרה רבקה רחל ולאה הוא יברך וירפא את החולה מ. ג. טוסי רפואת הנפש ורפואת הגוף במהרה ובזמן קרוב וכן יהי רצון ונאמר אמן
We love you and admire your courage
yael and uri Abraham